I have decided to start writing this blog about my mum, Kate, who was diagnosed with dementia in September 2010. I have become aware that there are some who think blogging about a relative with dementia is unethical and a betrayal of trust. I don’t fall into this camp. I may have done before I had experienced caring for mum however I now feel we carers need all the help and support we can get.
I am doing it for 2 main reasons, firstly to provide a diary record for my family and myself and secondly, to be of possible help and support to other carers. It’s always useful to read about people experiencing the same problems as oneself. I’ve trawled the Internet for information about dementia but haven’t come across anything helpful written by carers. Feeling you are on your own is one of the main problems with being a carer so it is always reassuring to hear about people going through exactly the same problems.
I moved in to live with mum 11 months ago when my sister, brother and myself decided she really was not safe to live on her own. There has been a slow but steady deterioration during the year and obviously I am aware that this will continue for the foreseeable future. I am coping, mostly, and I have a good family support network but I do panic at times about how the future will pan out and what level of care I will be required to give. As I have said many times ‘I didn’t sign up for this’! However it is what it is and maybe one day I will be expecting my children to care for me with dementia!
If you want to start from the beginning, here is the first entry. Otherwise, use the navigation on the right to explore.
Note: All personal names have been changed to protect the innocent!