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Monthly Archives: June 2012

Knickers and Ladders

I haven’t written much lately for various reasons.  I was a bit down last week when I was on my own without family support and didn’t much feel like writing.  Also nothing too major has happened so I sometimes feel I’m just repeating myself and writing the same thing over and over again.

My sister and brother have returned from holiday (thank goodness) and everything is carrying on as ‘normal’.  Mum continues to say she hates the Day Centre.  She always tries to tell me some sort of horror story about what happened that day but I think most of it is based on paranoia and getting hold of the wrong end of the stick.   She had an obsession about her seatbelt on the bus, last week.  She was worried because she can’t do it up and the Carer would be cross with her.  What actually happened was that Mum tends to try and undo her seatbelt while the bus is moving!  She also told me about the ‘terrifying’ experience she’d had today but it all turned out to be based on a TV programme she was watching.  No change there then!

She also told us about someone who’d been playing a game of ‘knickers and ladders’.  Sounds like an interesting game – not the sort they should perhaps be playing in a Day Centre!

The one good thing that has happened is that her sleep pattern has more or less altered back to how it used to be.  It just suddenly began about a week ago when she slept through until 9 a.m. and it’s been fairly consistent since then.  Touch Wood!  So at last I am getting a much better night’s sleep which can go a long way to helping cope.

 
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Posted by on June 28, 2012 in Diary

 

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All alone

My sister and brother are both on holiday at the same time from today for a week. It couldn’t be helped but it was the only week my sister could manage to get away and my brother had already arranged his holiday.  I took her and my niece to the airport this morning and actually felt a sense of panic begin to overwhelm me.

It’s been a tricky week as my daughter moved into her new flat in Manchester last Saturday and obviously I wanted to help her and get involved but was unable to offer her all the support she needed.  I managed to get a night away on the Saturday when Jean covered for me then went over again on Monday and Thursday for the day but had to be back for the Day Centre closing. It’s not good when you have to choose your mother over your daughter!

Mum’s not been good at all this week.  The crying has turned into actual sobbing at times.  A couple of days ago I had to ring Jean at around 4 pm to come round and help me as Mum was beside herself and was accusing me of feeding her poison.  I think she meant poisonous ideas as opposed to actual poison!!  It upsets me when she does this as I can see it as yet another symptom I am aware may arise.

She has some sort of sense of me changing where we live and changing the basics of her life.  She keeps asking me to put it back to how it used to be.  I only wish I could!

Anyway I am hoping this week goes okay without my usual support network but I can’t say I’m looking forward to it.

 
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Posted by on June 16, 2012 in Diary

 

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Update

I’ve finally got to the bottom of why Mum is distressed after the hairdresser has been.  We think that she believes she has actually gone to a hairdressing salon and she is sitting waiting for me to collect her.   She is getting agitated when Denise has left and a long time passes before I get home.   I have decided I need to be here from now on when she has her hair done.

We stayed in most of the Jubilee Holiday watching events on the TV which Mum did seem to enjoy to a certain extent.  However whilst watching the flotilla on the Thames, she got rather agitated and she seemed to think she was actually on the Queen’s barge.  Said she was very cold and wanted to get off!

A couple of funny anecdotes:

-Mum suddenly told me the other day that I could easily pass for 32.  (I am 63!)  I pointed out that my daughter is 33 but that didn’t seem to have any significance!

-My son, Ben, came over for the day recently and we were sitting ‘chatting’ to Mum when she suddenly gave a big sigh and said “Oh – c’est une voyage!” quite clearly.

I have known for some time that she doesn’t really follow TV programmes any longer, even ones she used to love such as Coronation St.  Indeed, the main problem as I have previously mentioned is that she thinks the programmes are actually part of her life and talks to the characters on the screen then wonders why they don’t reply.  However the other day the ad break came on and Mum was really confused.  When I tried to explain that it was the adverts, she really didn’t understand what they were!

If only we could see the world through the eyes of a dementia sufferer.  I told her this morning that she’d left her toast in the kitchen to which she replied, “I haven’t, it’s here” and patted the arm of the chair to point it out.  Then later when I brought her a cup of coffee she lifted an imaginary cup of coffee to her mouth.  She’s done that before but it’s very spooky.  Why can she see things that aren’t there and not see things that are there?

The sundowners continue to get worse.  I feel I can never really have a relaxed evening any longer as Mum is constantly fidgeting or wandering around the flat with no purpose.  Then she continually asks me questions that don’t make any sense.  Sometimes, if she disappears, I have to check what she’s up to as one of her latest obsessions is changing her clothes.  She’s just done it now, while I’m writing this, and she came back in the room with her trousers inside out!

But the worst part of the sundowners is the crying.  It’s distressing for her and also for me.  I have taken her to the GP about this and he increased her anti-depressant dose but it made no difference.  He thinks it’s an inherent part of her illness – great!   When I ask her why she’s crying she usually doesn’t know but sometimes says she’s frightened but doesn’t know what of.

She continues to not enjoy the Day Centre.  She came in yesterday and burst into tears.  When I asked her what what was wrong she said “If you’d had a day like I’ve had, you’d cry!”  She started to tell me some convoluted tale about the second world war and Belsen concentration camp, and how frightened she was.  Someone stroked her hand but she knew that was the secret signal!

I was so worried I actually rang the Day Centre.  I spoke to the Officer in Charge who couldn’t understand where it had come from.  She said they’d had a quiz in the afternoon as they often do and Mum had seemed fine, in fact she actually had a laugh with her whilst Mum was waiting for the bus.  She told me the problem is that Mum probably won’t tell them when she’s frightened but she will keep an eye on her as she has noticed that she is deteriorating.

Happy days!

 

 

 

 

 

 
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Posted by on June 8, 2012 in Diary

 

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